I have decided to name my Lupus, Lily. I figured since my Lupus is not going away anytime soon I might as well try to befriend her. Yesterday morning when I woke up Lupus Lily was beating on me worse than she ever has. I could hardly even walk. I know I have been doing too much lately but I have so many things in life that I want to do and have been too afraid to do. Lupus Lily could decide to attack my kidneys tomorrow and shut them down. IF that happens I want to be able to say that despite having Lupus I did this and that. I don’t want to live part of a life because of Lupus. If it means trips to the ER for relief then so be it. I don’t want to look back and say I should have. I can now look back and say I did it.
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